Praying for Erik.

Erik has been going through some tests. We want answers as to why he is so delayed. The scary thing is, some of these answers could bring us to tears. If he has Rett's Syndrome (a strong suspicion) then his life span would not be super long. That brings me grief. What I have to do is remember that he has not been diagnosed yet. I often wonder if just the infantile spasms and epileptic seizures are causing all of his delays. Poor little guy goes through so much. Erik turned 2 yrs. old on March 1st. He does not sit up, roll over or even hold his head up very good. As of last week, he weighed 16 lbs. 4 oz. Not very big for a 2 yr. old. But, so much bigger than his tiny, 1 lb. 3 oz. size. I knew that we'd have to face a lot with him being a micro preemie and all, but I never realized it would be this hard. We love him so much and he brings so much joy to his family. The thought that we might lose him is just devastating. But, I will try and focus on the positive. He is alive right now and he smiles and coos. He even laughs out loud which makes me laugh because it is so cute when he laughs. He's my little sweetie. God certainly gives me an extra dose of love for the little guy. I am praying that he does not have Rett's Syndrome. I pray that he lives a long and happy life. I love you Erik! Love, Aunty Karen