Update

I just got off the phone with my brother and they have gotten a result back from one of the tests. Erik does have a seizure disorder (I don't know what kind) that can result in mental retardation. They are hoping that the medication they give him will work and help him to grow normally. Please pray that they find the right meds so Erik isn't brain damaged. It is sad news for us to hear. I love this baby no matter what, but I'd love for him to be able to learn to walk and talk. He is so special to me and I just adore him. At 1:15 this afternoon (3-25-09) They are going to do the suck and swallow test to see if the food goes to his lungs. I hope he passes this test, because if he doesn't, they'll have to put a "button" in his stomach to feed him formula. They are also going to do an MRI today to see what's going on in his brain. Hopefully there isn't too much brain damage. I know he's intelligent right now because he recognizes his family, he smiles and coos and he also has an opinion when you do something he doesn't like. Last night when the doctor was trying to measure him, he fought her. When the nurse started messing with his IV he fought her. When I was aked to help hold his arm still so she could change the shunt, he was calm and peaceful, which, of course, made me very proud. I know he know's who I am. He didn't fight the nurse or cry because he had his Aunty. Once, he did start to fuss, but then I just kissed his chubby cheeks and he relaxed right away. If Erik does need a "button" in his tummy, then they will be doing a surgery today. PLEASE PRAY!! I know most of you don't know Erik, but you know me and I am begging you to pray! "The effectual, fervant prayer of a righteous man availeth MUCH".